FINAL PROGRAMME

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Access to streaming of Conference Lectures here

Friday 11.11.2016

08:00 – 09:00 Registration

09:00 – 09:30 Opening Ceremony

09:30 – 10:30 PLENARY LECTURE

 MODERATOR: Sue Ziebland

 What Archie Cochrane’s Case Narrative of 1943 Teaches

 Brian Hurtwitz

10:30 – 11:00 Coffee break

11:00 – 12:30 Parallel Session A

Health concepts and services

MODERATOR Rika Sakuma Sato

1. Experiences of Ageing in Australia: Remote, rural and regional access to health services.Ryan, Kath ; Wild, Kayli; Team, Victoria; Tudball, Jacqueline;Smith, Lorraine
2. “It’s very difficult to understand how patient narratives can contribute to improve health services” – a review of the evidence to counter a common reviewer concern. Biller-Andorno, Nikola; Streeck, Nina; Glässel, Andrea; Drewniak, Daniel
3. Between the facts and the myths: Managing patient’s chronic pain narratives. Ahlsen, Birgitte; Nicholls, David
4. Drawing on narrative accounts of dementia in Dutch dementia care education. Lamerichs, Joyce; Manna, Alma; Van der Linden, Katja
5. Development of Educational Program Using Patients’ Narratives in DIPEx-Japan as a Trigger Film. Morita, Natsumi; Iba, Noriko; Hirokuni , Beppu; Yuko, Hirono; Rumiko, Akimoto; Chikako, Nakamura; Keiko, Goto; Emiko, Wada; Yoko, Setoyama; Akiko, Aoki; Tomiko, Takeuchi; Akiko, Sawada; Sato, Rika Sakuma; Semba, Miyuki
6. Life stories as tools to change public health care systems: Examples and reflections from studies among Norwegian users of complementary and alternative medicine. Salamonsen, Anita

11:00 – 12:30 Parallel Session B

Health narratives and Subjectivity

MODERATOR Sue Ziebland

1. “Rushing to a new, unwanted me”: multiple medicines breaking and remaking personal narratives. Tudball, Jacqueline; Ryan, Kath; Smith, Lorraine; Williamson, Margaret

2. Negative effects of social support for patients with inflammatory bowel disease. Palant, Alexander; Wolfgang, Himmel

3. Narrating the phantom limb. Heavey, Emily

4. “I will claim that I am a very good success story”: gender and men’s narration of long- term experiences of WLS. Groven, Karen Synne; Ahlsen, Birgitte; Robertson, Steven

5. «Its not your baby, you know the baby belongs to the hospital»; parent narratives of neonatal surgery and recovery. Hinton, Lisa; Knight, Marian; Locock, Louise

6. «Halfway towards recovery»: rehabilitating the relational self in narratives of postnatal depression. Stone, Meredith; Kokanovic, Renata

11:00 – 12:30 Parallel Session C

What can research into patient experiences teach us about good communication in health care?

MODERATOR Susan Law

1. How doctors speak in patients‘ illness narratives. Lucius-Hoene , Gabriele; Haug, Stephanie

2. ‘I had bad headaches and I was getting tired of telling this doctor’: Experiences of Diabetics. Stubbe, Maria

3. Finding the treatment that is right for me. Holmberg, Christine; Schultze, Martin; Müller-Nordhorn, Jacqueline

4. Learning from other people’s experiences. Ryan, Kath

5. Challenges in patient professional communication regarding treatment preferences. Ormel, Ilja; Law, Susan

6. Learning to listen: Use of an illness narrative interview protocol to promote patient-centered care. Navarro de Souza, Alicia

12:30 – 14:00 LUNCH

14:00 – 15:00 PLENARY LECTURE

MODERATOR: Susan Law

The Remoralization of Illness

Arthur Frank

15:00 – 16:00 Parallel Session D

(Bio-)Ethics

MODERATOR Feito Grande, Lydia

1. Narratives of children participating in clinical trials: reasons to change informed consent procedures? Luchtenberg, Malou; Maeckelberghe, Els; Locock , Louise; Powell, Lesley; Verhagen, Eduard

2. Women´s experiences with regular breast cancer screening in Norway. Gjøstein, Dagrun Kyte

3. Narrative Ethics in Medical Catastrophes: A Case Study from Hurricane Katrina. Hudson Jones, Anne

4. All’s well that ends well? Stories of Death and Dying within Narrative. Streeck, Nina

15:00 – 16:00 Parallel Session E

Narrativas de Salud y Subjetividad (A)

MODERATOR Alfonso García Hernández

1. Efectos de la reflexión comprensiva y la construcción de sentido mediante el relato de vida en un espacio de interrelación basado en la palabra y la escucha. Bonafont Castillo, Anna

2. Para notar melhor a vida: o encontro entre a narrativa e os processos de cuidado humanizado em saude. Orofino, Maria Marta

3. Medicina y narrativas. Diferencias en el discurso de médicos y pacientes sobre el sufrimiento y la enfermedad: Análisis de entrevistas en Atención Primaria. Cerame del Campo , Alvaro

4. Niveles deseados de implicación en su proceso de enfermedad y relación con os profesionales sanitarios: análisis secundario de las narrativas de pacientes con diabetes tipo 2 (proyecto DIPEx España). Duque, Victor; Mahtani, Vinita; Sanz, Emilio

15:00 – 16:00 Parallel Session F

Social Media and the use of Internet

MODERATOR Sara Ryan

1. Connecting the own illness story when reading about illness experiences of others on a website. – An evaluation study using the Think Aloud Method. Breuning, Martina; Bengel, Jürgen; Schäfer-Fauth, Lisa

2. Towards Reducing Stigma: New Media Mental Health Narratives. Birch, Michael

3. Social Media and Health Narratives: Representing the ‘Health Self’. Kent, Rachael

4. Measuring the impact of publicly available narratives on patients’ engagement in health care. Holmberg, Christine; Keller, Bettina; Rieckmann, Nina; Müller-Nordhorn, Jacqueline

16:00 – 17:00 Parallel Session G

MODERATOR José Lázaro

Narrative and History: a case report accounting for The Lancet’s slow acceptance of germ theory.

Richardson, Ruth

16:00 – 17:00 Parallel Session H

(Bio-) Ética

MODERATOR Domingo Moratalla, Tomás

1. El potencial de la bioética narrativa: de la peripecia a la sabiduría. Domingo Moratalla, Tomás; Feito Grande, Lydia

2. Narrativas de médicos colombianos en contexto de guerra: Principios y acciones que orientan la toma de decisión en situaciones dilemáticas. Urrego Mendoza, Diana Zulima

3. Teatro-Foro: una metodología innovadora para aprender ética. Altisent, Rogelio; Galbe, José; Giménez, Rocio; Berdié, Beatriz; Seves, Berta; García- Machín, Jesús; Lozano, Teresa; Pérez de Vallejo, Chusa

4. Estudio cualitativo sobre la percepción y preferencias de los pacientes que acuden a un centro de salud mediante una herramienta teatral. Blasco Casorran, Marta; Clares Puncel, María Teresa; Ferrer Sorolla, Daniel; Pueyo Gascon, Diego; Altisent Trota , Rogelio

16:00 – 17:00 Parallel Session I

Change and obstruction in the web of on-line health information (The Navigating Knowledge Landscapes network)

MODERATOR Anna Lydia Svalastog

1. The on-line web as an arena for individual strong voices. On personal narratives, addiction and resistance. Svalastog, Anna Lydia

2. Narratives as a knowledge-context combination in the knowledge landscapes. Gajović, Srećko; Svalastog, Anna Lydia

3. Patient autonomy expressed in self-biographical health narratives. Ringstad, Øystein

20:30 – Congress dinner (Upon registration)

Real Casino de Tenerife. Plaza de la Candelaria 12

With an “after dinner talk” (Ruth Richardson)…

Saturday 12.11.2016

09:00 – 10:00 PLENARY LECTURE

MODERATOR: Vinita Mahtani

The role of narrative in Person Centred Care

Nicky Britten

10:00 – 11:30 Parallel Session J

Exploring chronic pain narratives by using participatory theatre methods (Theatre performance)

MODERATOR Emilio J. Sanz

Exploring chronic pain narratives by using participatory theatre methods. (Theater performance). Larsen, Henry; Heape, Chris; Preben, Friis

10:00 – 11:30 Parallel Session K

Narrativas en la educación de ciencias de la salud

MODERATOR Vinita Mahtani

1. Narrativas y práctica reflexiva en enfermería. Choperena Armendáriz, Ana

2. Medicina Narrativa: una mirada diferente para la formación integral de médicos en la Pontificia Universidad Javeriana, Cali. Florez Villafañe, Gloria Ines

3. La vida de un ahogado: explorando la empatía por los pacientes desde una clase de fisiología de la respiración. Gómez, Leonardo; Martínez Sánchez, Miguel Eduardo; Parra Chico, Wilson Andrés

4. Caminhos da Criação para promoção da Saúde. Orofino, Maria Marta; Kurtz, Diego Monroe; Pekaman, Renata

5. Papel político del Médico en el conflicto colombiano. Percepciones desde un curso de Medicina Narrativa. Parra Chico, Wilson Andrés

6. Narrativa crítica: aprendiendo a cuidar. Olivé Ferrer, M Carmen

11:30 – 12:30 PLENARY LECTURE

MODERATOR: José Lázaro

The Challenges of the ‘new medicine’ and the place of narrative.

Isabel Fernandes

12:30 – 14:00 LUNCH

14:00 – 15:00 PLENARY LECTURE

MODERATOR: Emilio J. Sanz

The Singular Importance of Plural Voices

Rachel Grob

15:00 – 16:00 Parallel Session L

Arte y Literatura

MODERATOR Mariola Marrero

1. Quantas intençoes: educaçao da saúde e conexóes com a cultura. Valdez Poletto, Ana Lucia; dos Santos Valdez, Maria Elisabete

2. Médicos Escritores ou Escritores Médicos? – interseções entre medicina e literatura. Geovanini, Fátima; Andrade, Luciana; Mallet, Ana Luisa; Kestenberg, David; Monteiro, Renata; Barros, Aurora

3. Ante el poder de la palabra médica. Cordero Villamizar, Luz Elena

4. José Saramago e as interiténcias da morte. Carelli, Fabiana

15:00 – 16:00 Parallel Session M

«La narrativa como elemento clave en el proceso de salud-enfermedad-atención: experiencias etnográficas aplicadas a los cuidados enfermeros»

MODERATOR Roser Fernández Peña

1. “Percepciones de las mujeres y parejas durante el embarazo, parto y posparto tras someterse a técnicas de reproducción asistida”. Crespo Mirasol, Esther

2. “El apoyo informal en la enfermedad desde la perspectiva del paciente crónico”. Fernández Peña, Rosario

3. “De las narrativas de la locura: ¡Yo no estoy loco! ¿Por qué estoy aquí?”. Márquez Romero, María Isabel

4. “Narrativas de las percepciones y vivencias de estar ingresado en una Unidad de Cuidados Intensivos a raíz del episodio mediático de Gripe A”. Prat Caballol, Rita

15:00 – 16:00 Parallel Session N

Health narratives and Subjectivity / Patient relationship

MODERATOR Lorraine Smith

1.  ‘A smile costs nothing but means absolutely everything’: a qualitative study of young people’s view and experiences of what makes a good consultation with the GP. Prinjha, Suman

2. “My driving was everything to me” Narratives of driving as a marker of identity. Locock, Louise; Stepney, Melissa; Kirkpatrick, Susan; Prinjha, Suman; Dumelow, Carol; Ryan, Sara;

3. Destruction and reconstruction of retirement narratives: poor health, mobility and revisions of a future life. Tudball, Jacqueline; Team, Victoria; Ryan, Kath; Smith, Lorraine

4. The DNA of the doctor/patient relationship. Plapler, Hélio; Carelli, Fabiana Buitor

16:00 – 17:00 Parallel Session O

Psicoterapia y Enfermedad crónica

MODERATOR Juan José Martínez Jambrina

1. La participación informada en la detección precoz del cáncer colorectal. Chávarri, Ana Toledo; Perestelo Pérez, Lilisbeth; Abt Sacks, Analía; Pérez Ramos, Jeanette; Burón Pust, Andrea; González Hernández, Nerea; Serrano Aguilar, Pedro

2. Historias potenciales e historias contadas: La teoría narrativa de Paul Ricoeur para la práctica de la Psicología Clínica y la Psicoterapia. Trujillo Trujillo, Servando David

3. La deconstrucción y reconstrucción narrativa de las historias clínicas según la indicación formal de Martin Heidegger. Trujillo Trujillo, Servando David

4. La autobiografía en el abordaje de las psicosis. Martínez Jambrina, Juan José

16:00 – 17:00 Parallel Session P

Narrativas de salud y subjetividad (B)

MODERATOR José Lázaro

1. Repertorios de objetos evocadores de recuerdos en padres que perdieron hijos. García-Hernández, Alfonso Miguel

2. Narrativas en torno a la ausencia del hijo fallecido versus tiempo. García-Hernández, Alfonso Miguel

3. La narrativa en la vivencia de la fibromialgia: estrategia de empoderamiento y contribución científica. Olivé Ferrer, M Carmen; Costa Abos, Silvia; Isla Pera, M Pilar

4. ¿Qué aportan la narrativas de las personas con distrofias hereditarias de retina para mejorar la práctica clínica?. Chávarri, Ana Toledo; Trujillo Martín, Mar; Sedeño, Tasmania del Pino; Perestelo Pérez, Lilisbeth; Abt Sacks, Analía; Serrano Aguilar, Pedro

16:00 – 17:00 Parallel Session Q

Chronic Illnesses

MODERATOR Maya Lavie-Ajayi

1. Mental Illness at work, authenticity in question: Experiencing, concealing and revealing depression at work. Ridge, Damien; Broom, Alex; Kokanovic, Renata; Hill, Nicholas; Ziebland, Sue

2. The Good Citizen with cancer: managing an ambivalence in Sweden, Denmark and the UK. Ziebland, Sue

3. Patient Narratives and the Unvoiced Other: The Centrality of Pets in the Lives of People with Chronic Illness. Schlesinger , Mark; Grob, Rachel

4. ‘Sigh of relief’: Narratives about the use of medical Cannabis.  Lavie-Ajayi, Maya

17:00 – 17:30 CLOSING CEREMONY

Evening: Informal visit to La Laguna (UNESCO World Heritage Cities)

 

VIDEO PRESENTATIONS: 

“Arts-Based Research” and Literature

• Media representations of mental health and art initiatives

Atanasova, Dimitrinka; Koteyko, Nelya; Brown, Brian; Crawford, Paul

• Documental ‘Desahucios y salud’, un ejemplo de difusión de resultados cualitativos en Salud Pública a través del formato audiovisual.

López Doblas, Manuela; Suess, Amets; Cillero Capel, José Antonio; García Toyos, Noelia; Luque Martín, Nuria; Ruiz Azarola, Ainhoa; Ruiz Perez, Isabel; Tamayo Velázquez, Isabel

• Enfermedades mediáticas y periféricas: estrategias artísticas ante los procesos de significación

Del Río Almagro, Alfonso; Rico Cuesta, Marta

• Extraordinary communities – what happens when catastrophes/disasters hit us?

Breivik, Jan-Kåre

• Diálogos con y desde la enfermedad. Producción artística con pacientes de hepatitis C

Miralles Crisóstomo, Pepe

• Experiencias hospitalarias del paciente. Exteriorización de lo oculto

Gil Gil , Cristian

• Doble Retorno. Arte y enfermedad en diálogo. Producción artística con pacientes de enfermedades inflamatorias autoinmunes

Pensado, Tere

• Animando el relato de un paciente de Crohn. Capacidades dentro de las restricciones

López Izquierdo , M. Ángeles

• La montaña mágica: relatos artísticos a partir de la residencia en el Hospital Marina Salud de Dénia

Gascó, Mar

• Empatía y relaciones. Dialogando con pacientes para la realización de trabajos artísticos que reflejen nuevos aspectos de su enfermedad

Tristán Tristán , Isabel

• People, places and prosperity: Using participant photography to investigate the role of social context in life after cancer treatment.

Bravington, Alison; Johnson, Miriam; Macleod, Un

• Giving Children a Voice Through Art: To Understand and Educate About the Impact of Juvenile Idiopathic Arthritis by Creating Art and Telling Digital Stories. 

Paivi Miettunen, Michael Lang, Anastasia Dropol, Catherine Laing, Susanne Benseler, Tommy Gerschman, Nadia Luca, Heinrike Schmeling, Nicole Johnson, Jaymi Taiani, Brian Rusted

(Bio-)Ethics

• Casuistry in Cardiological Contexts: A Case Study of Epistemic Scalability

Prenosil, Joshua

•  Diretiva Antecipada de Vontade como uma narrativa de fim de vida, o resgate da autonomia (ou da relação médico paciente?)

 Monteiro, Renata; Geovanini , Fátima; Silva Junior, Aluísio

Chronic Illnesses

• Benefit finding and professional identity: an analysis of narratives of healthcare professionals suffering from chronic pain

• Understanding knee ostheoarthritis from the patients’ perspective: a qualitative study of living experiences

Berenguera, Anna; Pujol Ribera, Enriqueta; Carmona-Terés, V.; Moix Queraltó, J; Lumillo-Gutiérrez, I.; Mas, X; Batlle-Gualda, E; Gobbo-Montoya, M; Jodar- Fernández, L.

• A tale of two “burdens” – everyday morality and stigma resistance in narratives of type 2 diabetes and mild cognitive impairment

Gomersall, Tim

• An innovative care intervention through Narrative Medicine  for General Practitioners and patients with type 2 Diabetes

Piana, Natalia

• Experiences of patients living after stroke: A qualitative study – From illness narratives to ICF categories

Glässel, Andrea; Coenen, Michaela

• “This illness diminishes me. What it does is like theft”: A qualitative synthesis of people’s experiences of living with asthma

Eassey, Daniela; Pickles, Kristen; Reddel, Helen; Locock, Louise; Smith., Lorraine

• “I like to know and make my own choices”. Personal Experiences of Severe Asthma: A Review

Eassey, Daniela; Pickles, Kristen; Reddel, Helen; Foster, Juliet; Smith., Lorraine

• Living with Leprosy: Materiality, Transformation, and Interdependency in Evelyn Leandro’s Abandoned – or the Struggle with a Long-forgotten Illness

Herges, Katja

• A Visual Narrative of Chaos and Quest: Patricia Lay-Dorsey’s Falling Into Place

Soares, Marta

•  To tell or not to tell about one’s diabetes at the work place. 

Hänninen, Vilma & Hakkarainen, Pirjo

Clinical Practice and Medical Records

• Patient narratives within the Models of Child Health Appraised (MOCHA) project.

Alma, Manna; Prinjha, Suman; Palant, Alexander; Kluzova Kracmarova, Lucie; Mahtani, Vinita; Sanz, Emilio

• Trabajando juntos en la mejora de la cooperación entre servicios para promoción del Envejecimiento Activo

Rodríguez-Martín, Beatriz; Notario-Pacheco, Blanca; Martínez-Vizcaíno, Vicente; Martínez-Andrés, María

• Integrating Medical Records with Narrative Based Medicine in rare and chronic diseases: Conclusive remarks from the S.T.o.Re. project

Gentile Amalia , Egle; Polizzi, Agata; Mathani Chugani , Vinita; Marrero Díaz , María D.; Sanz Alvarez, Emilio J; Zampolini, Mauro; Stefanov , Rumen; Iskrow, Georgi ; Sakka, Paraskevi; Ongel, Kurtulus; Taruscio , Domenica

• La “historia clínica”: entre la verdad factual, la verdad narrativa y los valores

Martínez Jambrina, Juan José

• Can perceived food intolerance be a manifestation of depression? A case study?

Girard, Elodie

Health narratives and Subjectivity

• La importancia epistemológica de las narrativas en psiquiatría

López Santin, José Manuel; Álvaro Serón, Patricia

• Comunicarse sin palabras

Cirera-Serrallonga, Eva

• Negotiating the pathway of recovery; stories by rehabilitated fistula survivors

Degge, Hannah; Hayter, Mark; Laurenson, Mary

• Dutch end-of-life decisions for children: quality of living and dying.

Brouwer, Marije; Maeckelberghe, Els; Verhagen, Eduard

• Salir de las consultas: propuestas para el abordaje de la promoción de la salud en atención primaria según ciudadanos, informantes clave comunitarios y profesionales de la salud

Pons-Vigués , Mariona; Berenguera Ossó, Anna; Moreno-Peral, P.; March , Sebastiá; Ripoll, J.; Rubio, M.; Pombo-Ramos, H.; Asensio-Martínez, A; Bolaños , E; Martínez-Carazo, C; Maderuelo-Fernández, JA; Martínez-Andrés , M; Pujol Ribera, Enriqueta

• Experiencias de Pacientes y Usuarios: Contribución de la Práctica Basada en Narrativas a la Práctica Basada en Evidencia.

Analía Abt Sacks, Lilisbeth Perestelo Pérez, Ana Toledo Chávarri, Jeanette Pérez Ramos, Andrea Burón Pust, Nerea González Hernández, Pedro Serrano Aguilar

• La empatía en la narrativa como herramienta de cambio en pacientes con Síndrome de Fibromialgia

Portillo, Mónica; Roth, Patricia; Folch, Blanca; Montero , Eugenio; Palop , Vicente; Sempere , Mara

• Preserving a masculine self in face of illness and disability: The case of older Sabra men

Spector-Mersel, Gabriela

• Deconstructing and Reconstructing Disease: The Commercialization of Breast Cancer.

Ndaiga, Eleanor

• Salud, promoción de la salud, activos y déficits en salud según ciudadanos, informantes clave comunitarios y profesionales de atención primaria

Pujol Ribera, Enriqueta; Coma Auli, N; Pons-Vigués, M.; Berenguera Ossó, Anna; Moreno-Peral, P.; Mora, S.; Asencio-Martínez, A.; March, S.; Pombo- Ramos, H.;Martínez- Andrés, M.

• Depressive position, gratitude and psychoanalytic attitude in a Henry Miller’s “Big Sur and the Oranges of Hieronymus Bosch”

Demianchuk , Mariia

• The experiences of two brazilian families with the birth of premature extrmely low-birth-weight infants up to five years of age: the use of narratives

Porto Pereira , Sylvia Maria

• “Health Experience Research” in Japan: an Overview

Sato, Rika Sakuma; Iba, Noriko; Sawada, A.

• Narrative of suffering and redemption

Bozic-Vrbancic, Senka; Kokanovic, Renata

• Tell me Through Music:  Transforming Power of Music to Overcome Physical or Emotional Loss: Individual Digital Stories. 

Paivi Miettunen, Michael Lang, Emanuele Dimitri

Rare Diseases

• When experiences of ill-health do not match expectation: ‘carrying’ Alport  Syndrome

Stepney, Melissa; Ryan, Sara

• Parents’ narratives on diagnostic delay in rare disease

Manna, Alma; Van der Mei, Sijrike

• How did personal and community narratives fuel the spread of the Ebola outbreak in West Africa?

Thomas , Kate

Social media and use of the internet

• Escuela de Pacientes, hacia una narrativa transmedia

López Doblas, Manuela; Luque Martín, Nuria; Prieto Rodríguez, Mª Ángeles; March Cerdá, Joan

• Situating Stigma in the UK and USA: ‘Mental Health’ Language in News and Special Interest Social Media

Birch, Michael

Use of narrative in teaching health sciences

• El análisis de las narrativas sobre trastornos y enfermedades crónicas en la formación como antropólogo/a experiencias reflexivas en la asignatura de antropología de la salud del grado de antropología  social

Cristina Larrea-Killinger, Marta Contijoch, Gina Cortés, Helena Fabré , Gioia Engel, Anna Gimeno, Rita Gutiérrez, Oskar-Ananda Ladero, Josep Lluís Lancina

• Literatura e Medicina: uma experiência de ensino

Mallet, Ana Luisa; Andrade, Luciana P.L.S.; Porto Pereira, Sylvia M.; Araújo Ferreira, Silvana;  Barros, Aurora; Vaz, Luiz; Melo Geovanini, Fátima Cristina

• Todo aluno tem uma história para contar: narrativas pessoais de estudantes de medicina durante a disciplina de Humanidades Médicas

Geovanini, Fátima; Andrade, Luciana; Mallet, Ana Luisa; Damas, Jéssika; Skacel, Anna Catarina

• In defense of the narrative anecdote?

Moniz, Tracy; Lingard, Lorelei; Watling, Chris

• Using atypical illness literary accounts in order to enhance the medical students’ critical thinking about illness

Vidrutiu, Cristina